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A dementia diagnosis can come with a lot of emotions, questions, and uncertainty. Whether you are living with dementia, caring for a loved one, or seeking information after a recent diagnosis, you are not alone.
Here you’ll find trusted resources, practical guidance, and caregiver support to help you navigate the journey ahead with confidence.
A dementia diagnosis can bring many questions and challenges for both individuals and families. This section offers information, practical tools, and support to help you navigate the journey with confidence.
Resources include information on:
As dementia changes over time, extra support can help. Transitions LifeCare’s palliative care team works with patients and families to manage symptoms, plan ahead, and improve quality of life. Palliative care can be provided alongside other treatments and at any stage of a serious illness.
We can help with:
Hospice care focuses on comfort, dignity, and quality of life for people living with advanced dementia. Transitions LifeCare provides expert care and support for patients and families as needs change over time.
The Centers for Medicare & Medicaid Services (CMS) created the Guiding an Improved Dementia Experience (GUIDE) Model to improve support for people living with dementia and their caregivers.
The GUIDE Model emphasizes:
Early Stages of Dementia
Part 2 Middle Stages of Dementia
Mild Dementia
Moderate Stages of Dementia
Late Stage Dementia
Progression of Dementia
Normal Aging vs. Dementia
Types of Dementia
Behavioral Symptom in Dementia
Hallucinations & Delusions
Empathetic Communication
Communication and Dementia
Learning to understand the WHY of behaviors: The 6 P’s
Tips & Suggestions to Make Your World More Dementia Friendly
Refusing to Accept Help
Showing Love for People Living with Dementia
Dementia Alliance of North Carolina is the state’s go-to resource for local support, information, and education about Dementia-related diseases, including Alzheimer’s. The majority of their programs and services are available at no cost to individuals in North Carolina.
Support programs include care consultations, caregiver assistance grants, support groups, education, and a vast network of other community resources.
Phone: 919-832-3732 Website: dementianc.org
The Center for Volunteer Caregiving programs include respite volunteers, transportation, and education.
Phone: 919-460-0567 website: volunteercaregiving.org
Resources for Seniors provides general resources and services for senior adults.
Phone: 919-872-7933 website: resourcesforseniors.com
The Durham Center for Senior Life can assist with respite services for caregivers of older adults living with Dementia/Alzheimer’s.
Phone: 919-688-8247 website: dcslnc.org
Alzheimer’s Association offers training and caregiver support. The 24/7 hotline especially helpful with de-escalation of agitated dementia patients and support for caregivers.
24/7 Hotline: 800-272-3900 website: alz.org/nc
Resources for caregivers of people with Alzheimer’s disease and related Dementias.
Phone: 800-438-4380 website: alzheimers.gov
Duke Dementia Family Support Program provides education, support, and engagement opportunities to individuals living with dementia and their families. Services are free of charge and no affiliation with Duke Health is required.
Phone: 919-660-7510 website: dukefamilysupport.org
Alzheimer’s disease publications available for ordering.
website: order.nia.nih.gov
A variety of educational offerings for every caregiver, regardless of where they are in their caregiving journey.
phone: 800-733-1476 website: lifecarememorypartners.org
Resources on a variety of topics; understanding dementia, dealing with difficult behavior changes caused by dementia, assisting a person with dementia with daily activities such as bathing, dental care, incontinence, and nutrition; what to do about driving, working with caregiver frustration, and much more!
phone: 800.445.8106 website: caregiver.org/
The Community and Senior Services of Johnston County provides respite, support groups, and resources for caregivers.
Phone: 919-934-6066 website: cssjohnston.org
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